Robot | Path | Permission |
GoogleBot | / | ✔ |
BingBot | / | ✔ |
BaiduSpider | / | ✔ |
YandexBot | / | ✔ |
Title | BEYONDXLH |
Description | Welcome to ACKNOWLEDGED BY THE YALE IRB 2/8/2023 Enrolled Participants Available only to enrolled participants: Answer Surveys Access Data Portal Welcome to BEYOND X |
Keywords | N/A |
WebSite | beyondxlh.com |
Host IP | 96.45.82.50 |
Location | United States |
Site | Rank |
US$1,470
Last updated: 2023-05-04 06:30:51
beyondxlh.com has Semrush global rank of 0. beyondxlh.com has an estimated worth of US$ 1,470, based on its estimated Ads revenue. beyondxlh.com receives approximately 169 unique visitors each day. Its web server is located in United States, with IP address 96.45.82.50. According to SiteAdvisor, beyondxlh.com is safe to visit. |
Purchase/Sale Value | US$1,470 |
Daily Ads Revenue | US$1 |
Monthly Ads Revenue | US$40 |
Yearly Ads Revenue | US$488 |
Daily Unique Visitors | 11 |
Note: All traffic and earnings values are estimates. |
Host | Type | TTL | Data |
beyondxlh.com. | A | 300 | IP: 96.45.82.50 |
beyondxlh.com. | A | 300 | IP: 96.45.83.122 |
beyondxlh.com. | A | 300 | IP: 96.45.83.206 |
beyondxlh.com. | A | 300 | IP: 96.45.82.163 |
beyondxlh.com. | NS | 86400 | NS Record: ns1.dnsmadeeasy.com. |
beyondxlh.com. | NS | 86400 | NS Record: ns4.dnsmadeeasy.com. |
beyondxlh.com. | NS | 86400 | NS Record: ns0.dnsmadeeasy.com. |
beyondxlh.com. | NS | 86400 | NS Record: ns3.dnsmadeeasy.com. |
beyondxlh.com. | NS | 86400 | NS Record: ns2.dnsmadeeasy.com. |
ACKNOWLEDGED BY THE YALE IRB 2/8/2023 Enrolled Participants Available only to enrolled participants: Answer Surveys Access Data Portal Welcome to BEYOND XLH The study is a collaborative research effort among industry (Ultragenyx Pharmaceutical, Inc.), academia (Yale University), and a patient-advocacy group (The XLH Network, Inc.) to characterize XLH and other chronic hypophosphatemic disorders from the patient perspective. Research data is collected via a mobile/web-based platform, called Rarify™, in which participants answer periodic questions. What will this research data be used for? For You & For Your Doctor Promote long-term engagement of patients and Health Care Providers (HCPs). Aid efforts to educate newly diagnosed patients and their families. For Treatment Development Evaluate long-term progression of the disorder and increase understanding of hypophosphatemic disorders (including XLH and others). For Regulators & Payers Provide real-world data on health care resources and |
HTTP/1.1 301 Moved Permanently Date: Tue, 26 Oct 2021 08:43:39 GMT Content-Length: 0 Connection: close Location: https://www.beyondxlh.com Server: DNSME HTTP Redirection HTTP/2 200 content-type: text/html content-length: 44890 last-modified: Thu, 06 May 2021 08:21:35 GMT accept-ranges: bytes server: AmazonS3 date: Tue, 26 Oct 2021 08:43:40 GMT etag: "8c26b061b02d58a392721a9bef8bab38" vary: Accept-Encoding x-cache: RefreshHit from cloudfront via: 1.1 1f6bbb8b479535097ebf685be63db948.cloudfront.net (CloudFront) x-amz-cf-pop: ORD51-C4 x-amz-cf-id: hS2n4fJAOYs4tpK3AOBlNT0qdplihkkvOmy6CmD2TccsACnQnPGgnA== |
Domain Name: BEYONDXLH.COM Registry Domain ID: 2308662306_DOMAIN_COM-VRSN Registrar WHOIS Server: whois.enom.com Registrar URL: http://www.enomdomains.com Updated Date: 2021-09-10T11:51:27Z Creation Date: 2018-09-10T23:36:03Z Registry Expiry Date: 2022-09-10T23:36:03Z Registrar: eNom, LLC Registrar IANA ID: 48 Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited Name Server: NS0.DNSMADEEASY.COM Name Server: NS1.DNSMADEEASY.COM Name Server: NS2.DNSMADEEASY.COM Name Server: NS3.DNSMADEEASY.COM Name Server: NS4.DNSMADEEASY.COM DNSSEC: unsigned >>> Last update of whois database: 2021-09-14T09:36:00Z <<< |